sarcoidosis patient charter en

As European patient advocates, we are committed to contributing to the improvement of patient
care and quality of life. That is why we have defined this joint strategy for the future.

Only together will we bring about a path of change. Let us walk this way in unity.


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What is sarcoidosis ?

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This rare disease is characterised by the development of small nodules in the body of inflammatory connective tissue called granulomas. Lungs, skin, muscles, joints, bones, eyes, liver, kidneys, heart and nervous system can be affected. Granulomas can leave scars, interfere with the functioning of injured organs and cause pain. In more than 90% of the cases, the lungs are affected.

The most common symptoms

  • Dyspnoea and dry cough
  • Sensation of oppression and pain in the thorax
  • Flu symptoms, muscle and joint pain
  • Skin rash on arms and legs
  • Irritation of the eyes and visual disorders
  • Swelling of the lymph nodes around the neck
  • Generalized fatigue and limitation of physical capabilities